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Available Questionnaires

Quality-of-life questionnaires available to license

The following quality-of-life questionnaires can be licensed through MILO.  If you are interested in licensing any of the following questionnaires, please use our questionnaire request form.


Inflammatory Bowel Disease Questionnaire (IBDQ)

Therapeutic area/applications:

 Summary:

The IBDQ is the gold standard in inflammatory bowel disease research. IBDQ is a validated and reliable tool to measure health-related quality of life in adult patients with inflammatory bowel disease, ulcerative colitis, or Crohn's disease. The questionnaire consists of 32 questions scored in four domains: bowel symptoms, emotional health, systemic systems, and social function. The IBDQ is a respected quality of life questionnaire used extensively in academic research and clinical trials. This questionnaire has been translated to 93 languages and is available as the Stoma and Short IBDQ versions.  The Short Inflammatory Bowel Disease Questionnaire (SIBDQ) is a simple, validated, 10 item questionnaire, taken from the original 32 question IBDQ, that can be easily scored and interpreted by clinicians.

Reference:   Gastroenterology 1989; 96:804-10

 


Premenstrual Symptoms Screening Tool (PSST)

Therapeutic area/applications:

 Summary:

The Premenstrual Symptoms Screening Tool (PSST) is a validated, simple, user-friendly screening tool to identify women who suffer from severe Premenstrual Syndrome (PMS) or Premenstrual Dysphoric Disorder (PMDD). The questionnaire consists of 19 questions regarding how symptoms interfere with relationships and daily activities to quickly establish if a woman qualifies for PMS or PMDD. The PSST is less time consuming and more practical than many other available questionnaires, has been translated to 17 languages and is also available in a version that is more tailored to adolescents.

Reference: Archives Womens Mental Health 2003; 6:203-209

 


Chronic Respiratory Disease Questionnaire (CRQ)

Therapeutic area/applications:

 Summary:

This validated instrument is a widely used measure of health-related quality of life in patients with chronic airflow limitation. The CRQ is also an evaluative tool that measures the longitudinal changes over time in patients with chronic heart disease or heart failure. Patients are asked to choose important daily activities at baseline, subsequently perform those activities and during the follow-up session are asked about their shortness of breath while completing their chosen activities. The instrument consists of 20 questions scored on a 7-point Likert-type scale in four domains: dyspnea, fatigue, emotional function and mastery. The CRQ is available in over 20 languages.

Reference:  Thorax 1987; 42:773-778

 


Chronic Respiratory Disease Questionnaire Self-Administered Standardized (CRQ-SAS)

Including:

  • Chronic Respiratory Disease Questionnaire Interviewer-Administrated Standardized (CRQ-IAS)
  • Chronic Respiratory Disease Questionnaire Self-Administered Individualized (CRQ-SAI)

Therapeutic area/applications:

 Summary:

All of these versions are derived from the original CRQ tool and therefore, is scored on a 7-point Likert-type scale in four domains covering: dyspnea, fatigue, emotional function and mastery. Regardless of being self or interviewer administered, the CRQ measures the quality of life in individuals with COPD, chronic airflow limitation or various lung diseases.

The CRQ-SAS is the self-administered format with standardized dyspnea questions. Unlike the original CRQ, there is no need for eliciting activities that cause shortness of breath. Instead, all respondents are asked to answer five standardized questions about their shortness of breath the have experienced when they have completed certain activities in the past.

The CRQ-IAS is the interviewer administered format with standardized dyspnea questions. Similar to the CRQ-SAS, with the difference being that an interviewer asks the respondents the five questions regarding their shortness of breath when carrying out certain activities in the past.

The CRQ-SAI is the self-administered format with individualized activities. Unlike the other CRQ tools, this version contains individualized dyspnea questions where respondents choose the five most important activities that have caused them to experience shortness of breath during the past two weeks and answer questions regarding those chosen activities.

Reference:   Chest 2003; 124:1421-1429


Health Related Quality of Life in Children with Epilepsy (CHEQOL)

Therapeutic area/applications:

 Summary:

The CHEQOL is a validated self-report and parent proxy respondent for health-related qualify of life that measures how people with epilepsy feel in relationships and are affected by the disease. This tool is easy to administer and suitable for children who are 8 years and older and their parents. The parent proxy measure is useful as a complement to the child self-report measure. The CHEQOL is available in four different languages.

Reference: Epilepsia 2003; 44:598-612

 


Perianal Disease Activity Index (PDAI) - 04-056

Therapeutic area/applications:

 Summary:

The PDAI is a validated, simple five-point index, which is easy to administer in an office setting.  This instrument sensibly quantifies the perianal disease severity, has acceptable measurement variation and is able to detect important changes in perianal activity status. 

Reference: Journal of Clinical Gastroenterology 1995; 20:27-32

 


Global Ratings of Change Questionnaire (GRCQ)

Therapeutic area/applications:

 Summary:

The GRC is a validated questionnaire consisting of 10 questions that provides a global measure to confirm, interpret and generalize findings of a health related quality of life (HRQOL) instruments or outcomes.  It has 3 items that assess the overall effect according to whether a patient experienced any change in activity limitation, symptoms, or feelings since the treatment started using a 7-point scale. The GRC has been used to establish the clinically minimal important difference in evaluative studies or to measure a global ratings change in health status or HRQL. The GRC also establishes a range for changes in questionnaire scores that correspond to moderate and large changes in the domains of interest. These domains of interest, for the use of this questionnaire, can be focused to specific domains of health such as dyspnea, depression etc.

References: Journal of Clinical Epidemiology 2002; 55:900-908

     Mayo Clinic Protocol 2002; 77:371-83

 


Chronic Heart Failure Questionnaire (CHQ)

Therapeutic area/applications:

 Summary:

The CHQ is a validated evaluative tool to measure longitudinal change over time of patients with chronic heart disease or heart failure. The CHQ distinguishes between people who have improved or deteriorated from people who did not. There are 16 questions that assess dyspnea during daily activities, fatigue and emotional function.

Reference: Journal of General Internal Medicine 1989; 4:101-107

 


Polycystic Ovary Syndrome Questionnaire (PCOSQ)

Therapeutic area/applications:

 Summary:

The PCOSQ is a validated quality of life questionnaire concerning health-related issues in women with polycystic ovary syndrome. This instrument uses a 7-point scale to answer 26 questions in five domains: emotions, body hair, weight, infertility and menstrual problems. The PCOSQ is available in self-administered or interviewer-administered formats and in both English and Portuguese (Portugal dialect).

Reference: Journal of Clinical Epidemiology & Metabolism 1998; 83: 976-1987


 

Please email milo@mcmaster.ca for further information.